Making space..
Making space to write about my health and connect with other people that would like to discuss Congenital Heart Defects (CHD), disability, chronic illness and chronic pain. I feel like some days I just feel like a regular 35 year old just getting by and doing the things I need to do. Sometimes I feel like a terrible burden on friends and family because my body is utterly failing me and ruining my life. Last night when R came home from work I just felt out of sorts, like I needed to eat but a snack didn't help. I had a bit of Gatorade but I didn't drink the whole thing because I am fluid restricted to 1.5 litres a day. I made R drive me to the hospital, I went through ED (quickly! The perks of being a heart failure patient!) and they did all the tests and I was fine. A bit of low blood pressure (not unusual). I worked out that I possibly hadn't had enough to drink (I was quite fatigued and resting all day) and that I probab...